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Share Your COVID-19 Journey!

PR
Penny Rosenblum
Tue, Jul 13, 2021 3:44 PM

Hello AERNet Colleagues,

Below is an email about a study we are doing at AFB. The Journey Forward
https://www.afb.org/research-and-initiatives/flatten-inaccessibility-survey/journey-forward

study examines the impact of COVID-19 on U.S. adults who are blind, have
low vision, or are deafblind. The study closes August 9. We would really
appreciate your help in getting the word out. Please share with your
clients, friends, etc.

With appreciation,

Penny

How has the COVID-19 pandemic impacted you?

[image: American Foundation for the Blind's Centennial logo: AFB 100,
Inclusion Knows No Limits]
https://click.everyaction.com/k/32321790/295393949/-1917188581?emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387&contactdata=KuEv2g0pmrckkApSqQ3iDjKKdK%2BpwSHCrZ2L%2BT15ANdZL6qST2ID3%2FU7ES0pSkVzNMNA%2BWXiF6damJ9CzLJL%2BQ%3D%3D&sourceid=N421JAN1EM1&N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=

Hello,

I recently picked up my container of Lysol wipes on our kitchen counter and
stored it back under the sink. I couldn’t think of the last time I had
wiped down groceries or a doorknob. As a person who has low vision, I feel
my life is progressing back to how it was prior to the COVID-19 pandemic,
and yet there are other ways it is not. For example, I’m still not
comfortable taking a rideshare service like Lyft. I also shudder each time
I consider the challenges I had getting myself, my husband, and my 86
year-old mother COVID-19 vaccination appointments.

[image: An older woman reads information about the COVID-19 virus using a
desktop video magnifier (CCTV). The font on the screen is white and the
background black.]

I imagine as a U.S. adult who is blind, has low vision, or is deafblind,
you’ve had many experiences in the last 16+ months where your visual
impairment has intersected with the COVID-19 pandemic. Some of your
experiences were ones shared by those without visual impairments, but I am
wagering some were very specific to blindness or low vision.

As we look forward, we invite you to share your experiences. As a follow up
to our Flatten Inaccessibility: Impact of COVID-19 on Adults with Visual
Impairments

https://click.everyaction.com/k/32321791/295393950/-121103732?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387
(Flatten Inaccessibility) study from April 2020, we want to hear your
story so we can see what has, and has not, changed.

How long will it take me to complete the survey?

We estimate our Journey Forward: Recovery from the COVID-19 Pandemic by
Blind and Low Vision Adults

https://click.everyaction.com/k/32321792/295393951/-1807208170?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387
survey
will take you 30-45 minutes to complete. In the survey, you’ll be asked
about how you obtained COVID-19 data, information about testing, and
vaccines. We’ll check in on your experience with transportation during the
pandemic along with topics including healthcare, education, employment, and
access to prescriptions, food, and supplies. Using the same device you can
return to the survey for up to one week to complete it.

Will I receive any compensation for taking the survey?

Those who complete the survey will have an opportunity to sign up for a
gift card drawing. We will randomly select 20 individuals who will each
receive a $20 Amazon gift card.

*How will AFB use the data? *

In May we were contacted by a national news outlet asking for current
information about adults with visual impairments related to the COVID-19
pandemic. We had anecdotal stories, but not hard data. This pivotal moment
made our organization realize that as thought leaders, we need to take an
active role in gathering current data to share with government officials,
companies, organizations, and those with vision loss. In all probability,
one day there will be another large-scale emergency. We know our country
could have been better prepared for our current pandemic in general, and
especially when it came to people with disabilities. The data from the Journey
Forward
https://click.everyaction.com/k/32321793/295393952/-1807208170?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387
survey will help AFB and others give voice to the needs of those like
myself who live with a visual impairment every day.

We’re only asking for 30-45 minutes of your time. Please take the
survey by August
9, 2021
. And, while you’re at it, please help us reach more than the 1,921
participants we had in the Flatten Inaccessibility
https://click.everyaction.com/k/32321794/295393953/-121103732?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387
study. Forward this invitation to others who are blind, have low vision, or
are deafblind.

[image: Photo of Dr. L. Penny Rosenblum . She is a white woman with short
hair wearing a white shirt and glasses smiling at the camera.]

Be Safe,

Dr. L. Penny Rosenblum and the Research Team

[image: Find AFB on Facebook]
https://click.everyaction.com/k/32321795/295393954/-1808632241?emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387&contactdata=KuEv2g0pmrckkApSqQ3iDjKKdK%2BpwSHCrZ2L%2BT15ANdZL6qST2ID3%2FU7ES0pSkVzNMNA%2BWXiF6damJ9CzLJL%2BQ%3D%3D&N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=

[image: Find AFB on Twitter]
https://click.everyaction.com/k/32321796/295393955/860052975?emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387&contactdata=KuEv2g0pmrckkApSqQ3iDjKKdK%2BpwSHCrZ2L%2BT15ANdZL6qST2ID3%2FU7ES0pSkVzNMNA%2BWXiF6damJ9CzLJL%2BQ%3D%3D&N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=

©2021 American Foundation for the Blind. All rights reserved.

American Foundation for the Blind
1401 South Clark Street
Suite 730
Arlington, VA 22202
United States

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.

Hello AERNet Colleagues, Below is an email about a study we are doing at AFB. The *Journey Forward <https://www.afb.org/research-and-initiatives/flatten-inaccessibility-survey/journey-forward>* study examines the impact of COVID-19 on U.S. adults who are blind, have low vision, or are deafblind. The study closes August 9. We would really appreciate your help in getting the word out. Please share with your clients, friends, etc. With appreciation, Penny How has the COVID-19 pandemic impacted you? [image: American Foundation for the Blind's Centennial logo: AFB 100, Inclusion Knows No Limits] <https://click.everyaction.com/k/32321790/295393949/-1917188581?emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387&contactdata=KuEv2g0pmrckkApSqQ3iDjKKdK%2BpwSHCrZ2L%2BT15ANdZL6qST2ID3%2FU7ES0pSkVzNMNA%2BWXiF6damJ9CzLJL%2BQ%3D%3D&sourceid=N421JAN1EM1&N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=> Hello, I recently picked up my container of Lysol wipes on our kitchen counter and stored it back under the sink. I couldn’t think of the last time I had wiped down groceries or a doorknob. As a person who has low vision, I feel my life is progressing back to how it was prior to the COVID-19 pandemic, and yet there are other ways it is not. For example, I’m still not comfortable taking a rideshare service like Lyft. I also shudder each time I consider the challenges I had getting myself, my husband, and my 86 year-old mother COVID-19 vaccination appointments. [image: An older woman reads information about the COVID-19 virus using a desktop video magnifier (CCTV). The font on the screen is white and the background black.] I imagine as a U.S. adult who is blind, has low vision, or is deafblind, you’ve had many experiences in the last 16+ months where your visual impairment has intersected with the COVID-19 pandemic. Some of your experiences were ones shared by those without visual impairments, but I am wagering some were very specific to blindness or low vision. As we look forward, we invite you to share your experiences. As a follow up to our *Flatten Inaccessibility: Impact of COVID-19 on Adults with Visual Impairments* <https://click.everyaction.com/k/32321791/295393950/-121103732?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387> (*Flatten Inaccessibility*) study from April 2020, we want to hear your story so we can see what has, and has not, changed. *How long will it take me to complete the survey?* We estimate our *Journey Forward: Recovery from the COVID-19 Pandemic by Blind and Low Vision Adults* <https://click.everyaction.com/k/32321792/295393951/-1807208170?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387> survey will take you 30-45 minutes to complete. In the survey, you’ll be asked about how you obtained COVID-19 data, information about testing, and vaccines. We’ll check in on your experience with transportation during the pandemic along with topics including healthcare, education, employment, and access to prescriptions, food, and supplies. Using the same device you can return to the survey for up to one week to complete it. *Will I receive any compensation for taking the survey?* Those who complete the survey will have an opportunity to sign up for a gift card drawing. We will randomly select 20 individuals who will each receive a $20 Amazon gift card. *How will AFB use the data? * In May we were contacted by a national news outlet asking for current information about adults with visual impairments related to the COVID-19 pandemic. We had anecdotal stories, but not hard data. This pivotal moment made our organization realize that as thought leaders, we need to take an active role in gathering current data to share with government officials, companies, organizations, and those with vision loss. In all probability, one day there will be another large-scale emergency. We know our country could have been better prepared for our current pandemic in general, and especially when it came to people with disabilities. The data from the Journey Forward <https://click.everyaction.com/k/32321793/295393952/-1807208170?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387> survey will help AFB and others give voice to the needs of those like myself who live with a visual impairment every day. We’re only asking for 30-45 minutes of your time. Please take the survey by *August 9, 2021*. And, while you’re at it, please help us reach more than the 1,921 participants we had in the Flatten Inaccessibility <https://click.everyaction.com/k/32321794/295393953/-121103732?N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387> study. Forward this invitation to others who are blind, have low vision, or are deafblind. [image: Photo of Dr. L. Penny Rosenblum . She is a white woman with short hair wearing a white shirt and glasses smiling at the camera.] Be Safe, Dr. L. Penny Rosenblum and the Research Team [image: Find AFB on Facebook] <https://click.everyaction.com/k/32321795/295393954/-1808632241?emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387&contactdata=KuEv2g0pmrckkApSqQ3iDjKKdK%2BpwSHCrZ2L%2BT15ANdZL6qST2ID3%2FU7ES0pSkVzNMNA%2BWXiF6damJ9CzLJL%2BQ%3D%3D&N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=> [image: Find AFB on Twitter] <https://click.everyaction.com/k/32321796/295393955/860052975?emci=03155b78-f0d9-eb11-a7ad-501ac57b8fa7&emdi=1898cda2-e2e3-eb11-a7ad-501ac57b8fa7&ceid=8029387&contactdata=KuEv2g0pmrckkApSqQ3iDjKKdK%2BpwSHCrZ2L%2BT15ANdZL6qST2ID3%2FU7ES0pSkVzNMNA%2BWXiF6damJ9CzLJL%2BQ%3D%3D&N422JUL3EM1=&nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=> ©2021 American Foundation for the Blind. All rights reserved. American Foundation for the Blind 1401 South Clark Street Suite 730 Arlington, VA 22202 United States If you believe you received this message in error or wish to no longer receive email from us, please unsubscribe <https://email.everyaction.com/unsubscribeUnique/03155b78-f0d9-eb11-a7ad-501ac57b8fa7/1898cda2-e2e3-eb11-a7ad-501ac57b8fa7?nvep=ew0KICAiVGVuYW50VXJpIjogIm5ncHZhbjovL3Zhbi9FQS9FQTAwMy8xLzcyODI3IiwNCiAgIkRpc3RyaWJ1dGlvblVuaXF1ZUlkIjogIjE4OThjZGEyLWUyZTMtZWIxMS1hN2FkLTUwMWFjNTdiOGZhNyIsDQogICJFbWFpbEFkZHJlc3MiOiAiZWt1bWFyQGFmYi5vcmciDQp9&hmac=7LA0j2b8CpvPRfgtaL_de3iUz94kwqARGVP0ZpoWqxU=&id=109835325> .