ROP and using vision
Hi, Friends - I was asked to consult on a life plan for an adult who
presents with the following:
Female, 35 years old
Born 4 months prematurely; spent the first year+ of her life in the hospital
Neurological issues including seizures and incontinence
Cognitive issues, processing issues, very limited communication via speech
or sign language
Visually impaired/ROP, no usable vision in one eye due to removal of the
lens because of a car accident. No eyeglasses.
Cerebral palsy
The purpose of the evaluation is to assist in the implementation of a life
plan and to set up parameters to train the caregivers and employers who will
work with her daily at home and at her several volunteer jobs for the
specific goal of "getting her to use her vision" in her better eye.
She loves to watch videos and attends well to them. She loves the movement,
the colors and the sound. She can match some colors when reminded to "use
your eyes." She loves to sit on the front porch and observe her environment.
Her mother explained to me that she wants her to "use her vision" when (as
an example) she waters the plants. She will hold the watering can and water
indiscriminately; some of the water hits the plants and some of the water
hits the patio because she is not looking at what she is doing.
I will try to do a functional vision assessment in the future. I tried some
visual tasks at our initial meeting, and getting any type of response just
didn't happen.
How would you all suggest that I attempt this challenge?
Many thanks,
Sheila
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Off the top of my head reaction ... wondering if she would be better served
by tactile strategies. Use her other had (if she has use of it) to contact
the pot and do a better job of aiming the water in that direction.
c
On Wed, Aug 1, 2018 at 9:06 AM Sheila Amato brltrans@frontier.com wrote:
Hi, Friends – I was asked to consult on a life plan for an adult who
presents with the following:
Female, 35 years old
Born 4 months prematurely; spent the first year+ of her life in the
hospital
Neurological issues including seizures and incontinence
Cognitive issues, processing issues, very limited communication via
speech or sign language
Visually impaired/ROP, no usable vision in one eye due to removal of the
lens because of a car accident. No eyeglasses.
Cerebral palsy
The purpose of the evaluation is to assist in the implementation of a life
plan and to set up parameters to train the caregivers and employers who
will work with her daily at home and at her several volunteer jobs for the
specific goal of “getting her to use her vision” in her better eye.
She loves to watch videos and attends well to them. She loves the
movement, the colors and the sound. She can match some colors when reminded
to “use your eyes.” She loves to sit on the front porch and observe her
environment.
Her mother explained to me that she wants her to “use her vision” when (as
an example) she waters the plants. She will hold the watering can and water
indiscriminately; some of the water hits the plants and some of the water
hits the patio because she is not looking at what she is doing.
I will try to do a functional vision assessment in the future. I tried
some visual tasks at our initial meeting, and getting any type of response
just didn’t happen.
How would you all suggest that I attempt this challenge?
Many thanks,
Sheila
You are subscribed to AERNet, The Association for Education and
Rehabilitation of the Blind and Visually Impaired Listserv.
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--
Carol Evans, PhD
School Psychologist (Retired/Available for Consultation)
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
I was thinking exactly the same thing! Some tactile information to augment the vision (or replace it, if the vision is not functional). And an assessment would help to determine if the reason she puts the water anywhere is cognitive (doesn’t understand she’s supposed to put the water into the pot), or visual (can’t see the pot well enough).
I was also curious – removing the lens would not destroy the vision, sounds like maybe some paperwork needs clarification.
Good luck with your client, sound interesting!
-- Dona
Dona Sauerburger, COMS
Orientation and Mobility Specialist for the blind
301-858-0138 dona@sauerburger.org
www.sauerburger.org
How to Think if You Want to Change the World:
Spiritual Practices for Social Activism
www.magissa.org
From: Carol Evans
Sent: Wednesday, August 1, 2018 11:12 AM
To: Sheila Amato
Cc: aernet@lists.aerbvi.org [aernet@lists.aerbvi.org]
Subject: Re: [AERNet] ROP and using vision
Off the top of my head reaction ... wondering if she would be better served by tactile strategies. Use her other had (if she has use of it) to contact the pot and do a better job of aiming the water in that direction.
c
On Wed, Aug 1, 2018 at 9:06 AM Sheila Amato brltrans@frontier.com wrote:
Hi, Friends – I was asked to consult on a life plan for an adult who presents with the following:
Female, 35 years old
Born 4 months prematurely; spent the first year+ of her life in the hospital
Neurological issues including seizures and incontinence
Cognitive issues, processing issues, very limited communication via speech or sign language
Visually impaired/ROP, no usable vision in one eye due to removal of the lens because of a car accident. No eyeglasses.
Cerebral palsy
The purpose of the evaluation is to assist in the implementation of a life plan and to set up parameters to train the caregivers and employers who will work with her daily at home and at her several volunteer jobs for the specific goal of “getting her to use her vision” in her better eye.
She loves to watch videos and attends well to them. She loves the movement, the colors and the sound. She can match some colors when reminded to “use your eyes.” She loves to sit on the front porch and observe her environment.
Her mother explained to me that she wants her to “use her vision” when (as an example) she waters the plants. She will hold the watering can and water indiscriminately; some of the water hits the plants and some of the water hits the patio because she is not looking at what she is doing.
I will try to do a functional vision assessment in the future. I tried some visual tasks at our initial meeting, and getting any type of response just didn’t happen.
How would you all suggest that I attempt this challenge?
Many thanks,
Sheila
You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.
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--
Carol Evans, PhD
School Psychologist (Retired/Available for Consultation)
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.
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Thanks to the folks who responded so far… I’m so very glad to hear that I am on the right path. For those of you who suggested CVI… at our first meeting, I asked the mother if she had ever received a diagnosis of CVI (and explained what it is), and no – the mother had never heard of that before.
I, too, wonder if the issue is cognitive or visual…
Keep ideas coming! And thanks again,
Sheila
From: Dona Sauerburger [mailto:dona@sauerburger.org]
Sent: Wednesday, August 1, 2018 3:38 PM
To: Carol Evans; Sheila Amato
Cc: aernet@lists.aerbvi.org
Subject: Re: [AERNet] ROP and using vision
I was thinking exactly the same thing! Some tactile information to augment the vision (or replace it, if the vision is not functional). And an assessment would help to determine if the reason she puts the water anywhere is cognitive (doesn’t understand she’s supposed to put the water into the pot), or visual (can’t see the pot well enough).
I was also curious – removing the lens would not destroy the vision, sounds like maybe some paperwork needs clarification.
Good luck with your client, sound interesting!
-- Dona
Dona Sauerburger, COMS
Orientation and Mobility Specialist for the blind
301-858-0138 dona@sauerburger.org
www.sauerburger.org http://www.sauerburger.org/dona/
How to Think if You Want to Change the World:
Spiritual Practices for Social Activism
www.magissa.org http://www.magissa.org/
From: Carol Evans
Sent: Wednesday, August 1, 2018 11:12 AM
To: Sheila Amato
Cc: aernet@lists.aerbvi.org [aernet@lists.aerbvi.org]
Subject: Re: [AERNet] ROP and using vision
Off the top of my head reaction ... wondering if she would be better served by tactile strategies. Use her other had (if she has use of it) to contact the pot and do a better job of aiming the water in that direction.
c
On Wed, Aug 1, 2018 at 9:06 AM Sheila Amato brltrans@frontier.com wrote:
Hi, Friends – I was asked to consult on a life plan for an adult who presents with the following:
Female, 35 years old
Born 4 months prematurely; spent the first year+ of her life in the hospital
Neurological issues including seizures and incontinence
Cognitive issues, processing issues, very limited communication via speech or sign language
Visually impaired/ROP, no usable vision in one eye due to removal of the lens because of a car accident. No eyeglasses.
Cerebral palsy
The purpose of the evaluation is to assist in the implementation of a life plan and to set up parameters to train the caregivers and employers who will work with her daily at home and at her several volunteer jobs for the specific goal of “getting her to use her vision” in her better eye.
She loves to watch videos and attends well to them. She loves the movement, the colors and the sound. She can match some colors when reminded to “use your eyes.” She loves to sit on the front porch and observe her environment.
Her mother explained to me that she wants her to “use her vision” when (as an example) she waters the plants. She will hold the watering can and water indiscriminately; some of the water hits the plants and some of the water hits the patio because she is not looking at what she is doing.
I will try to do a functional vision assessment in the future. I tried some visual tasks at our initial meeting, and getting any type of response just didn’t happen.
How would you all suggest that I attempt this challenge?
Many thanks,
Sheila
You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.
To post a message to all the list members, send an email to aernet@lists.aerbvi.org.
Address list requests to: aernet-request@lists.aerbvi.org
To unsubscribe from this list, go to http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and follow instructions to unsubscribe. Go to the same address to access the list archives.
AERNet mailing list
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http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org
--
Carol Evans, PhD
School Psychologist (Retired/Available for Consultation)
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.
To post a message to all the list members, send an email to aernet@lists.aerbvi.org.
Address list requests to: aernet-request@lists.aerbvi.org
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When I was presenting on AudioAssisted Reading years ago, a couple of my
talks were titled "Changing Channels" ...
I just think that way.
On Wed, Aug 1, 2018 at 1:52 PM Sheila Amato brltrans@frontier.com wrote:
Thanks to the folks who responded so far… I’m so very glad to hear that I
am on the right path. For those of you who suggested CVI… at our first
meeting, I asked the mother if she had ever received a diagnosis of CVI
(and explained what it is), and no – the mother had never heard of that
before.
I, too, wonder if the issue is cognitive or visual…
Keep ideas coming! And thanks again,
Sheila
From: Dona Sauerburger [mailto:dona@sauerburger.org]
Sent: Wednesday, August 1, 2018 3:38 PM
To: Carol Evans; Sheila Amato
Cc: aernet@lists.aerbvi.org
Subject: Re: [AERNet] ROP and using vision
I was thinking exactly the same thing! Some tactile information to
augment the vision (or replace it, if the vision is not functional). And
an assessment would help to determine if the reason she puts the water
anywhere is cognitive (doesn’t understand she’s supposed to put the water
into the pot), or visual (can’t see the pot well enough).
I was also curious – removing the lens would not destroy the vision,
sounds like maybe some paperwork needs clarification.
Good luck with your client, sound interesting!
-- Dona
Dona Sauerburger, COMS
Orientation and Mobility Specialist for the blind
301-858-0138 dona@sauerburger.org
www.sauerburger.org http://www.sauerburger.org/dona/
*How to Think if You Want to Change the World: Spiritual Practices for
Social Activism *www.magissa.org http://www.magissa.org/
From: Carol Evans
Sent: Wednesday, August 1, 2018 11:12 AM
To: Sheila Amato
Cc: aernet@lists.aerbvi.org [aernet@lists.aerbvi.org]
Subject: Re: [AERNet] ROP and using vision
Off the top of my head reaction ... wondering if she would be better
served by tactile strategies. Use her other had (if she has use of it) to
contact the pot and do a better job of aiming the water in that direction.
c
On Wed, Aug 1, 2018 at 9:06 AM Sheila Amato brltrans@frontier.com wrote:
Hi, Friends – I was asked to consult on a life plan for an adult who
presents with the following:
Female, 35 years old
Born 4 months prematurely; spent the first year+ of her life in the
hospital
Neurological issues including seizures and incontinence
Cognitive issues, processing issues, very limited communication via
speech or sign language
Visually impaired/ROP, no usable vision in one eye due to removal of the
lens because of a car accident. No eyeglasses.
Cerebral palsy
The purpose of the evaluation is to assist in the implementation of a life
plan and to set up parameters to train the caregivers and employers who
will work with her daily at home and at her several volunteer jobs for the
specific goal of “getting her to use her vision” in her better eye.
She loves to watch videos and attends well to them. She loves the
movement, the colors and the sound. She can match some colors when reminded
to “use your eyes.” She loves to sit on the front porch and observe her
environment.
Her mother explained to me that she wants her to “use her vision” when (as
an example) she waters the plants. She will hold the watering can and water
indiscriminately; some of the water hits the plants and some of the water
hits the patio because she is not looking at what she is doing.
I will try to do a functional vision assessment in the future. I tried
some visual tasks at our initial meeting, and getting any type of response
just didn’t happen.
How would you all suggest that I attempt this challenge?
Many thanks,
Sheila
You are subscribed to AERNet, The Association for Education and
Rehabilitation of the Blind and Visually Impaired Listserv.
To post a message to all the list members, send an email to
aernet@lists.aerbvi.org.
Address list requests to: aernet-request@lists.aerbvi.org
To unsubscribe from this list, go to
http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and
follow instructions to unsubscribe. Go to the same address to access the
list archives.
AERNet mailing list
AERNet@lists.aerbvi.org
http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org
--
Carol Evans, PhD
School Psychologist (Retired/Available for Consultation)
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
You are subscribed to AERNet, The Association for Education and
Rehabilitation of the Blind and Visually Impaired Listserv.
To post a message to all the list members, send an email to
aernet@lists.aerbvi.org.
Address list requests to: aernet-request@lists.aerbvi.org
To unsubscribe from this list, go to
http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and
follow instructions to unsubscribe. Go to the same address to access the
list archives.
AERNet mailing list
AERNet@lists.aerbvi.org
http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org
--
Carol Evans, PhD
School Psychologist (Retired/Available for Consultation)
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
Dear Sheila, in my opinion, the diagnosis of CVI or rather the lack of, would be expected 35 years ago with an individual with so many concomitant issues. That does not mean that it wasn’t a factor. At any rate, in my opinion, at her age it is doubtful that a tactile/haptic approach would garner much considering her fascination with videos, colors, movement, sounds, cognition issues, etc. However, I could be wrong and often am. I suggest staying with strategies that address residual vision, audition, and movement. Whatever the modality, I suggest a strong behavioral approach. Just my thoughts. Bill
From: AERNet aernet-bounces@lists.aerbvi.org On Behalf Of Sheila Amato
Sent: Wednesday, August 1, 2018 2:53 PM
To: 'Dona Sauerburger' dona@sauerburger.org; 'Carol Evans' visionpsych@gmail.com
Cc: aernet@lists.aerbvi.org
Subject: Re: [AERNet] ROP and using vision
Thanks to the folks who responded so far… I’m so very glad to hear that I am on the right path. For those of you who suggested CVI… at our first meeting, I asked the mother if she had ever received a diagnosis of CVI (and explained what it is), and no – the mother had never heard of that before.
I, too, wonder if the issue is cognitive or visual…
Keep ideas coming! And thanks again,
Sheila
From: Dona Sauerburger [mailto:dona@sauerburger.org]
Sent: Wednesday, August 1, 2018 3:38 PM
To: Carol Evans; Sheila Amato
Cc: aernet@lists.aerbvi.orgmailto:aernet@lists.aerbvi.org
Subject: Re: [AERNet] ROP and using vision
I was thinking exactly the same thing! Some tactile information to augment the vision (or replace it, if the vision is not functional). And an assessment would help to determine if the reason she puts the water anywhere is cognitive (doesn’t understand she’s supposed to put the water into the pot), or visual (can’t see the pot well enough).
I was also curious – removing the lens would not destroy the vision, sounds like maybe some paperwork needs clarification.
Good luck with your client, sound interesting!
-- Dona
Dona Sauerburger, COMS
Orientation and Mobility Specialist for the blind
301-858-0138 dona@sauerburger.orgmailto:dona@sauerburger.org
www.sauerburger.orghttp://www.sauerburger.org/dona/
How to Think if You Want to Change the World:
Spiritual Practices for Social Activism
www.magissa.orghttp://www.magissa.org/
From: Carol Evans
Sent: Wednesday, August 1, 2018 11:12 AM
To: Sheila Amato
Cc: aernet@lists.aerbvi.orgmailto:aernet@lists.aerbvi.org [aernet@lists.aerbvi.org]
Subject: Re: [AERNet] ROP and using vision
Off the top of my head reaction ... wondering if she would be better served by tactile strategies. Use her other had (if she has use of it) to contact the pot and do a better job of aiming the water in that direction.
c
On Wed, Aug 1, 2018 at 9:06 AM Sheila Amato <brltrans@frontier.commailto:brltrans@frontier.com> wrote:
Hi, Friends – I was asked to consult on a life plan for an adult who presents with the following:
Female, 35 years old
Born 4 months prematurely; spent the first year+ of her life in the hospital
Neurological issues including seizures and incontinence
Cognitive issues, processing issues, very limited communication via speech or sign language
Visually impaired/ROP, no usable vision in one eye due to removal of the lens because of a car accident. No eyeglasses.
Cerebral palsy
The purpose of the evaluation is to assist in the implementation of a life plan and to set up parameters to train the caregivers and employers who will work with her daily at home and at her several volunteer jobs for the specific goal of “getting her to use her vision” in her better eye.
She loves to watch videos and attends well to them. She loves the movement, the colors and the sound. She can match some colors when reminded to “use your eyes.” She loves to sit on the front porch and observe her environment.
Her mother explained to me that she wants her to “use her vision” when (as an example) she waters the plants. She will hold the watering can and water indiscriminately; some of the water hits the plants and some of the water hits the patio because she is not looking at what she is doing.
I will try to do a functional vision assessment in the future. I tried some visual tasks at our initial meeting, and getting any type of response just didn’t happen.
How would you all suggest that I attempt this challenge?
Many thanks,
Sheila
You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.
To post a message to all the list members, send an email to aernet@lists.aerbvi.orgmailto:aernet@lists.aerbvi.org.
Address list requests to: aernet-request@lists.aerbvi.orgmailto:aernet-request@lists.aerbvi.org
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http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org
--
Carol Evans, PhD
School Psychologist (Retired/Available for Consultation)
http://www.aph.org/accessible-tests/position-papers/intelligence-testing/full/
http://www.myschoolpsychology.com/disability-information/visual-impairments/
You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.
To post a message to all the list members, send an email to aernet@lists.aerbvi.orgmailto:aernet@lists.aerbvi.org.
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