Hello fellow list serve members, I ​think that it is rare when a parent captures and shares moment to moment/in real time issues across settings in a forthright, open, honest way what it is like to have a child with a rare genetic condition that only 10 children have world wide - Bo helped find many of them thru social media (including Facebook, Good Morning America, the Today Show and others). Bo Bigelow is just such a parent. Tess has a complexity of neuro-developmental challenges and he shares what it is like to go through many different systems (e.g., medical evaluations, developmental evaluations, special education meetings), manage family time, etc. He has a Podcast that has weekly installments called Stronger Every Day. It is a VERY EASY and powerful listen - he does an installment every Wednesday. It is "addictive." I share this Podcast as I think we as professionals as well as the families that we work with can appreciate what is conveyed in a real, here and now fashion. Please consider "trying it out" and sharing it as you see fit. Appreciatively, Terese Terese Pawletko Ph.D. Licensed Psychologist (Maine, NH) Certified School Psychologist (Maine, NH, CT)