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Intervention in advance of an anticipated diagnosis of Retinosis Pigmentosa

PR
Patricia Rosen
Sun, Feb 5, 2017 4:25 PM

Hello all, and first of all many thanks for the discussion of Vision
Therapy!  I value your input and this particular discussion was so well
timed.

I have just evaluated a 3 year old with Feingold Syndrome.  His
ophthalmologist has told the parent that he has the potential for
development of Retinosis Pigmentosa- the ophthalmology report that I have
at this time states congenital ptosis, refractive ambyopia and he is being
corrected for hyperopia and astigmatism. No optometric vision training has
been recommended.

He's doing all of the three year old things, no vision issues evident in
his day to day performance or in the tasks listed on the Oregon. No worries
about visual motor skills. He turns his head to view in his periphery, but
does so when a light or toy is moved in either peripheral field.

I worry that I might miss something whenever I do an assessment. But my
question is, in the face of a visual diagnosis or vision loss anticipated
in the future, is an Educational vision service warranted?  I would have a
hard time justifying it given the assessment that I just did.

I was considering writing recommendations for the therapy and classroom
settings involving strengthening of upper body, teaching auditory
discrimination skills, encouraging tactile exploration.

I welcome your thoughts and expertise..Many thanks, and may you all win
your superbowl bets!  Patti.

Hello all, and first of all many thanks for the discussion of Vision Therapy! I value your input and this particular discussion was so well timed. I have just evaluated a 3 year old with Feingold Syndrome. His ophthalmologist has told the parent that he has the potential for development of Retinosis Pigmentosa- the ophthalmology report that I have at this time states congenital ptosis, refractive ambyopia and he is being corrected for hyperopia and astigmatism. No optometric vision training has been recommended. He's doing all of the three year old things, no vision issues evident in his day to day performance or in the tasks listed on the Oregon. No worries about visual motor skills. He turns his head to view in his periphery, but does so when a light or toy is moved in either peripheral field. I worry that I might miss something whenever I do an assessment. But my question is, in the face of a visual diagnosis or vision loss anticipated in the future, is an Educational vision service warranted? I would have a hard time justifying it given the assessment that I just did. I was considering writing recommendations for the therapy and classroom settings involving strengthening of upper body, teaching auditory discrimination skills, encouraging tactile exploration. I welcome your thoughts and expertise..Many thanks, and may you all win your superbowl bets! Patti.