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Simulation of vision with septo-optic dysplasia

CE
Carol Evans
Wed, Oct 26, 2011 9:11 PM

Valued colleagues:
 
Can anyone send me a picture, or direct me to a website with a picture that would simulate how a person with SOD would see?
 
Doing a consultation for an eval with young child suspected of having autism, and think that it would help the ADOS examiner to see what that visual field would look like.
 
Thanks very much for any response.
 
Carol Evans

Valued colleagues:   Can anyone send me a picture, or direct me to a website with a picture that would simulate how a person with SOD would see?   Doing a consultation for an eval with young child suspected of having autism, and think that it would help the ADOS examiner to see what that visual field would look like.   Thanks very much for any response.   Carol Evans
AS
Andrea Story
Sat, Oct 29, 2011 3:53 AM

I've never seen a pictorial simulation of SOD/ONH.  I think it varies in
expression so much from person to person that it's hard to generalize
SOD/ONH like the conditions that are regularly seen in those simulations
(macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).

Most of the eye conditions that are simulated are those that are late onset

  • which are ones that an adult can clearly articulate what their vision is
    like and what it is missing from before.

You might be able to do a informal field test with the child and make a
simulator with goggles (if visual field is the only thing you want to
simulate).  It would be an approximation but aren't all simulations an
approximation?

So many people with SOD/ONH have CVI like characteristics.  I haven't seen
good simulations of those except maybe illusions like this:

http://www.michaelbach.de/ot/cog_dalmatian/index.html

I for one would like to see a simulation of SOD/ONH if there is one out
there - but I don't think there is one.

-Andrea

On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans [email protected] wrote:

Valued colleagues:

Can anyone send me a picture, or direct me to a website with a picture that
would simulate how a person with SOD would see?

Doing a consultation for an eval with young child suspected of having
autism, and think that it would help the ADOS examiner to see what that
visual field would look like.

Thanks very much for any response.

Carol Evans

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Rehabilitation of the Blind and Visually Impaired Listserv.

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I've never seen a pictorial simulation of SOD/ONH. I think it varies in expression so much from person to person that it's hard to generalize SOD/ONH like the conditions that are regularly seen in those simulations (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.). Most of the eye conditions that are simulated are those that are late onset - which are ones that an adult can clearly articulate what their vision is like and what it is missing from before. You might be able to do a informal field test with the child and make a simulator with goggles (if visual field is the only thing you want to simulate). It would be an approximation but aren't all simulations an approximation? So many people with SOD/ONH have CVI like characteristics. I haven't seen good simulations of those except maybe illusions like this: http://www.michaelbach.de/ot/cog_dalmatian/index.html I for one would like to see a simulation of SOD/ONH if there is one out there - but I don't think there is one. -Andrea On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans <[email protected]> wrote: > Valued colleagues: > > Can anyone send me a picture, or direct me to a website with a picture that > would simulate how a person with SOD would see? > > Doing a consultation for an eval with young child suspected of having > autism, and think that it would help the ADOS examiner to see what that > visual field would look like. > > Thanks very much for any response. > > Carol Evans > > > > > You are subscribed to AERNet, The Association for Education and > Rehabilitation of the Blind and Visually Impaired Listserv. > > To post a message to all the list members, send an email to > [email protected]. > > Address list requests to: [email protected] > > To unsubscribe from this list, go to > http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and > follow instructions to unsubscribe. Go to the same address to access the > list archives. > _______________________________________________ > AERNet mailing list > [email protected] > http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org > >
CE
Carol Evans
Sat, Oct 29, 2011 4:47 AM

Andrea ... thank you so much!  That link has much to offer.  It might come in very handy in this situation.

I agree that all simulations are an approximation.  No two people, even with the same diagnosis and same acuity, see exactly alike.

Many years ago when I was gathering simulations for a presentation, I came across one of nystagmus.  It was in motion, showing what print would look like to a person with nystagmus.  I lost it, and despite searching for it many times, I never found it again. 

I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who can find a motion simulation of nystagmus for me! 

Thanks ... Carol Evans


From: Andrea Story [email protected]
To: Carol Evans [email protected]
Cc: "[email protected]" [email protected]; New vision list [email protected]; Siemsen OD Dennis [email protected]
Sent: Friday, October 28, 2011 9:53 PM
Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia

I've never seen a pictorial simulation of SOD/ONH.  I think it varies in expression so much from person to person that it's hard to generalize SOD/ONH like the conditions that are regularly seen in those simulations (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).  

Most of the eye conditions that are simulated are those that are late onset - which are ones that an adult can clearly articulate what their vision is like and what it is missing from before.  

You might be able to do a informal field test with the child and make a simulator with goggles (if visual field is the only thing you want to simulate).  It would be an approximation but aren't all simulations an approximation? 

So many people with SOD/ONH have CVI like characteristics.  I haven't seen good simulations of those except maybe illusions like this:

http://www.michaelbach.de/ot/cog_dalmatian/index.html

I for one would like to see a simulation of SOD/ONH if there is one out there - but I don't think there is one.  

-Andrea

On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans [email protected] wrote:

Valued colleagues:

 
Can anyone send me a picture, or direct me to a website with a picture that would simulate how a person with SOD would see?
 
Doing a consultation for an eval with young child suspected of having autism, and think that it would help the ADOS examiner to see what that visual field would look like.
 
Thanks very much for any response.
 Carol Evans
 

You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.

To post a message to all the list members, send an email to [email protected].

Address list requests to:  [email protected]

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Andrea ... thank you so much!  That link has much to offer.  It might come in very handy in this situation. I agree that all simulations are an approximation.  No two people, even with the same diagnosis and same acuity, see exactly alike. Many years ago when I was gathering simulations for a presentation, I came across one of nystagmus.  It was in motion, showing what print would look like to a person with nystagmus.  I lost it, and despite searching for it many times, I never found it again.  I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who can find a motion simulation of nystagmus for me!  Thanks ... Carol Evans ________________________________ From: Andrea Story <[email protected]> To: Carol Evans <[email protected]> Cc: "[email protected]" <[email protected]>; New vision list <[email protected]>; Siemsen OD Dennis <[email protected]> Sent: Friday, October 28, 2011 9:53 PM Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia I've never seen a pictorial simulation of SOD/ONH.  I think it varies in expression so much from person to person that it's hard to generalize SOD/ONH like the conditions that are regularly seen in those simulations (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).   Most of the eye conditions that are simulated are those that are late onset - which are ones that an adult can clearly articulate what their vision is like and what it is missing from before.   You might be able to do a informal field test with the child and make a simulator with goggles (if visual field is the only thing you want to simulate).  It would be an approximation but aren't all simulations an approximation?  So many people with SOD/ONH have CVI like characteristics.  I haven't seen good simulations of those except maybe illusions like this: http://www.michaelbach.de/ot/cog_dalmatian/index.html I for one would like to see a simulation of SOD/ONH if there is one out there - but I don't think there is one.   -Andrea On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans <[email protected]> wrote: Valued colleagues: >  >Can anyone send me a picture, or direct me to a website with a picture that would simulate how a person with SOD would see? >  >Doing a consultation for an eval with young child suspected of having autism, and think that it would help the ADOS examiner to see what that visual field would look like. >  >Thanks very much for any response. > Carol Evans >  > > > >You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv. > >To post a message to all the list members, send an email to [email protected]. > >Address list requests to:  [email protected] > >To unsubscribe from this list, go to http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and follow instructions to unsubscribe. Go to the same address to access the list archives. >_______________________________________________ >AERNet mailing list >[email protected] >http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org > >
AS
Andrea Story
Mon, Oct 31, 2011 6:54 AM

The reading with nystagmus simulation sounds very interesting.  Now I am
intrigued.

Was it something like a you tube video?

Here's something I found:

http://books.google.com/books?id=ypXYF-UeR_cC&pg=PA168&lpg=PA168&dq=simulation+of+reading+print+with+nystagmus&source=bl&ots=Zj_sZO47c3&sig=cc5WuWCRfnIdNL9l5J9KkRKR2U4&hl=en&ei=oEOuTpqtGuSFiALh5q3wCg&sa=X&oi=book_result&ct=result&resnum=3&ved=0CCwQ6AEwAg#v=onepage&q&f=false

It's from Low vision: research and new developments in rehabilitation By
Aart C. Kooijman.  It's a
description of how to use an overhead projector to simulate reading with
nystagmus.

-Andrea

On Fri, Oct 28, 2011 at 8:47 PM, Carol Evans [email protected] wrote:

Andrea ... thank you so much!  That link has much to offer.  It might come
in very handy in this situation.

I agree that all simulations are an approximation.  No two people, even
with the same diagnosis and same acuity, see exactly alike.

Many years ago when I was gathering simulations for a presentation, I came
across one of nystagmus.  It was in motion, showing what print would look
like to a person with nystagmus.  I lost it, and despite searching for it
many times, I never found it again.

I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who
can find a motion simulation of nystagmus for me!

Thanks ... Carol Evans


From: Andrea Story [email protected]
To: Carol Evans [email protected]
Cc: "[email protected]" [email protected]; New vision
list [email protected]; Siemsen OD Dennis [email protected]
Sent: Friday, October 28, 2011 9:53 PM
Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia

I've never seen a pictorial simulation of SOD/ONH.  I think it varies in
expression so much from person to person that it's hard to generalize
SOD/ONH like the conditions that are regularly seen in those simulations
(macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).

Most of the eye conditions that are simulated are those that are late
onset - which are ones that an adult can clearly articulate what their
vision is like and what it is missing from before.

You might be able to do a informal field test with the child and make a
simulator with goggles (if visual field is the only thing you want to
simulate).  It would be an approximation but aren't all simulations an
approximation?

So many people with SOD/ONH have CVI like characteristics.  I haven't seen
good simulations of those except maybe illusions like this:

http://www.michaelbach.de/ot/cog_dalmatian/index.html

I for one would like to see a simulation of SOD/ONH if there is one out
there - but I don't think there is one.

-Andrea

On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans [email protected]wrote:

Valued colleagues:

Can anyone send me a picture, or direct me to a website with a picture
that would simulate how a person with SOD would see?

Doing a consultation for an eval with young child suspected of having
autism, and think that it would help the ADOS examiner to see what that
visual field would look like.

Thanks very much for any response.

Carol Evans

You are subscribed to AERNet, The Association for Education and
Rehabilitation of the Blind and Visually Impaired Listserv.

To post a message to all the list members, send an email to
[email protected].

Address list requests to:  [email protected]

To unsubscribe from this list, go to
http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and
follow instructions to unsubscribe. Go to the same address to access the
list archives.


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The reading with nystagmus simulation sounds very interesting. Now I am intrigued. Was it something like a you tube video? Here's something I found: http://books.google.com/books?id=ypXYF-UeR_cC&pg=PA168&lpg=PA168&dq=simulation+of+reading+print+with+nystagmus&source=bl&ots=Zj_sZO47c3&sig=cc5WuWCRfnIdNL9l5J9KkRKR2U4&hl=en&ei=oEOuTpqtGuSFiALh5q3wCg&sa=X&oi=book_result&ct=result&resnum=3&ved=0CCwQ6AEwAg#v=onepage&q&f=false It's from Low vision: research and new developments in rehabilitation By Aart C. Kooijman. It's a description of how to use an overhead projector to simulate reading with nystagmus. -Andrea On Fri, Oct 28, 2011 at 8:47 PM, Carol Evans <[email protected]> wrote: > Andrea ... thank you so much! That link has much to offer. It might come > in very handy in this situation. > > I agree that all simulations are an approximation. No two people, even > with the same diagnosis and same acuity, see exactly alike. > > Many years ago when I was gathering simulations for a presentation, I came > across one of nystagmus. It was in motion, showing what print would look > like to a person with nystagmus. I lost it, and despite searching for it > many times, I never found it again. > > I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who > can find a motion simulation of nystagmus for me! > > Thanks ... Carol Evans > > ------------------------------ > *From:* Andrea Story <[email protected]> > *To:* Carol Evans <[email protected]> > *Cc:* "[email protected]" <[email protected]>; New vision > list <[email protected]>; Siemsen OD Dennis <[email protected]> > *Sent:* Friday, October 28, 2011 9:53 PM > *Subject:* Re: [AERNet] Simulation of vision with septo-optic dysplasia > > I've never seen a pictorial simulation of SOD/ONH. I think it varies in > expression so much from person to person that it's hard to generalize > SOD/ONH like the conditions that are regularly seen in those simulations > (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.). > > Most of the eye conditions that are simulated are those that are late > onset - which are ones that an adult can clearly articulate what their > vision is like and what it is missing from before. > > You might be able to do a informal field test with the child and make a > simulator with goggles (if visual field is the only thing you want to > simulate). It would be an approximation but aren't all simulations an > approximation? > > So many people with SOD/ONH have CVI like characteristics. I haven't seen > good simulations of those except maybe illusions like this: > > http://www.michaelbach.de/ot/cog_dalmatian/index.html > > I for one would like to see a simulation of SOD/ONH if there is one out > there - but I don't think there is one. > > -Andrea > > > > On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans <[email protected]>wrote: > > Valued colleagues: > > Can anyone send me a picture, or direct me to a website with a picture > that would simulate how a person with SOD would see? > > Doing a consultation for an eval with young child suspected of having > autism, and think that it would help the ADOS examiner to see what that > visual field would look like. > > Thanks very much for any response. > > Carol Evans > > > > > You are subscribed to AERNet, The Association for Education and > Rehabilitation of the Blind and Visually Impaired Listserv. > > To post a message to all the list members, send an email to > [email protected]. > > Address list requests to: [email protected] > > To unsubscribe from this list, go to > http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and > follow instructions to unsubscribe. Go to the same address to access the > list archives. > _______________________________________________ > AERNet mailing list > [email protected] > http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org > > > > >
CE
Carol Evans
Mon, Oct 31, 2011 11:03 AM

Andrea,

Very interesting resource ... thank you!  Maybe I could manage to do that thing with the transparency on the overhead projector.

 
It was video, but I don't think I knew about youtube then.  It was close to 13 years ago.

Thanks ... Carol


From: Andrea Story [email protected]
To: Carol Evans [email protected]
Cc: "[email protected]" [email protected]; New vision list [email protected]; Siemsen OD Dennis [email protected]
Sent: Monday, October 31, 2011 12:54 AM
Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia AND NYSTAGMUS

The reading with nystagmus simulation sounds very interesting.  Now I am intrigued.  

Was it something like a you tube video?  

Here's something I found:

http://books.google.com/books?id=ypXYF-UeR_cC&pg=PA168&lpg=PA168&dq=simulation+of+reading+print+with+nystagmus&source=bl&ots=Zj_sZO47c3&sig=cc5WuWCRfnIdNL9l5J9KkRKR2U4&hl=en&ei=oEOuTpqtGuSFiALh5q3wCg&sa=X&oi=book_result&ct=result&resnum=3&ved=0CCwQ6AEwAg#v=onepage&q&f=false

It's from Low vision: research and new developments in rehabilitation By Aart C. Kooijman.  It's a 
description of how to use an overhead projector to simulate reading with nystagmus.  

-Andrea

On Fri, Oct 28, 2011 at 8:47 PM, Carol Evans [email protected] wrote:

Andrea ... thank you so much!  That link has much to offer.  It might come in very handy in this situation.

I agree that all simulations are an approximation.  No two people, even with the same diagnosis and same acuity, see exactly alike.

Many years ago when I was gathering simulations for a presentation, I came across one of nystagmus.  It was in motion, showing what print would look like to a person with nystagmus.  I lost it, and despite searching for it many times, I never found it again. 

I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who can find a motion simulation of nystagmus for me! 

Thanks ... Carol Evans


From: Andrea Story [email protected]
To: Carol Evans [email protected]
Cc: "[email protected]" [email protected]; New vision list [email protected]; Siemsen OD Dennis [email protected]
Sent: Friday, October 28, 2011 9:53 PM
Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia

I've never seen a pictorial simulation of SOD/ONH.  I think it varies in expression so much from person to person that it's hard to generalize SOD/ONH like the conditions that are regularly seen in those simulations (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).  

Most of the eye conditions that are simulated are those that are late onset - which are ones that an adult can clearly articulate what their vision is like and what it is missing from before.  

You might be able to do a informal field test with the child and make a simulator with goggles (if visual field is the only thing you want to simulate).  It would be an approximation but aren't all simulations an approximation? 

So many people with SOD/ONH have CVI like characteristics.  I haven't seen good simulations of those except maybe illusions like this:

http://www.michaelbach.de/ot/cog_dalmatian/index.html

I for one would like to see a simulation of SOD/ONH if there is one out there - but I don't think there is one.  

-Andrea

On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans [email protected] wrote:

Valued colleagues:

 
Can anyone send me a picture, or direct me to a website with a picture that would simulate how a person with SOD would see?
 
Doing a consultation for an eval with young child suspected of having autism, and think that it would help the ADOS examiner to see what that visual field would look like.
 
Thanks very much for any response.
 Carol Evans
 

You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv.

To post a message to all the list members, send an email to [email protected].

Address list requests to:  [email protected]

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AERNet mailing list
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Andrea, Very interesting resource ... thank you!  Maybe I could manage to do that thing with the transparency on the overhead projector.   It was video, but I don't think I knew about youtube then.  It was close to 13 years ago. Thanks ... Carol ________________________________ From: Andrea Story <[email protected]> To: Carol Evans <[email protected]> Cc: "[email protected]" <[email protected]>; New vision list <[email protected]>; Siemsen OD Dennis <[email protected]> Sent: Monday, October 31, 2011 12:54 AM Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia AND NYSTAGMUS The reading with nystagmus simulation sounds very interesting.  Now I am intrigued.   Was it something like a you tube video?   Here's something I found: http://books.google.com/books?id=ypXYF-UeR_cC&pg=PA168&lpg=PA168&dq=simulation+of+reading+print+with+nystagmus&source=bl&ots=Zj_sZO47c3&sig=cc5WuWCRfnIdNL9l5J9KkRKR2U4&hl=en&ei=oEOuTpqtGuSFiALh5q3wCg&sa=X&oi=book_result&ct=result&resnum=3&ved=0CCwQ6AEwAg#v=onepage&q&f=false It's from Low vision: research and new developments in rehabilitation By Aart C. Kooijman.  It's a  description of how to use an overhead projector to simulate reading with nystagmus.   -Andrea On Fri, Oct 28, 2011 at 8:47 PM, Carol Evans <[email protected]> wrote: Andrea ... thank you so much!  That link has much to offer.  It might come in very handy in this situation. > >I agree that all simulations are an approximation.  No two people, even with the same diagnosis and same acuity, see exactly alike. > >Many years ago when I was gathering simulations for a presentation, I came across one of nystagmus.  It was in motion, showing what print would look like to a person with nystagmus.  I lost it, and despite searching for it many times, I never found it again.  > > >I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who can find a motion simulation of nystagmus for me!  > > >Thanks ... Carol Evans > > > > >________________________________ >From: Andrea Story <[email protected]> >To: Carol Evans <[email protected]> >Cc: "[email protected]" <[email protected]>; New vision list <[email protected]>; Siemsen OD Dennis <[email protected]> >Sent: Friday, October 28, 2011 9:53 PM >Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia > > >I've never seen a pictorial simulation of SOD/ONH.  I think it varies in expression so much from person to person that it's hard to generalize SOD/ONH like the conditions that are regularly seen in those simulations (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).   > > >Most of the eye conditions that are simulated are those that are late onset - which are ones that an adult can clearly articulate what their vision is like and what it is missing from before.   > > >You might be able to do a informal field test with the child and make a simulator with goggles (if visual field is the only thing you want to simulate).  It would be an approximation but aren't all simulations an approximation?  > > >So many people with SOD/ONH have CVI like characteristics.  I haven't seen good simulations of those except maybe illusions like this: > > >http://www.michaelbach.de/ot/cog_dalmatian/index.html > > >I for one would like to see a simulation of SOD/ONH if there is one out there - but I don't think there is one.   > > >-Andrea > > > > > >On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans <[email protected]> wrote: > >Valued colleagues: >>  >>Can anyone send me a picture, or direct me to a website with a picture that would simulate how a person with SOD would see? >>  >>Doing a consultation for an eval with young child suspected of having autism, and think that it would help the ADOS examiner to see what that visual field would look like. >>  >>Thanks very much for any response. >> Carol Evans >>  >> >> >> >>You are subscribed to AERNet, The Association for Education and Rehabilitation of the Blind and Visually Impaired Listserv. >> >>To post a message to all the list members, send an email to [email protected]. >> >>Address list requests to:  [email protected] >> >>To unsubscribe from this list, go to http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and follow instructions to unsubscribe. Go to the same address to access the list archives. >>_______________________________________________ >>AERNet mailing list >>[email protected] >>http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org >> >> > > >
AS
Andrea Story
Tue, Nov 1, 2011 5:25 PM

I don't completely understand congenital nystagmus but that won't stop me
from giving this further advice (my advice is worth what you pay for it!).

People with congenital nystagmus report that they do not see things move
(like print jumping around) so in this way the nystagmus simulation is
imperfect.  However, the simulation does show that the smaller print is
harder to read (it blurs when it is moved around).

You might want to explain when using this simulation that a person with
congenital nystagmus does not see the print jumping around.

I think you could reproduce the simulation on a computer screen (moving the
screen up and down with two fingers on the track pad) or on an iPad (using
the notes app that comes with the ipad I can move it up and down with a
finger).

-Andrea

On Mon, Oct 31, 2011 at 3:03 AM, Carol Evans [email protected] wrote:

Andrea,

Very interesting resource ... thank you!  Maybe I could manage to do that
thing with the transparency on the overhead projector.

It was video, but I don't think I knew about youtube then.  It was close
to 13 years ago.

Thanks ... Carol


From: Andrea Story [email protected]
To: Carol Evans [email protected]
Cc: "[email protected]" [email protected]; New vision
list [email protected]; Siemsen OD Dennis [email protected]
Sent: Monday, October 31, 2011 12:54 AM
Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia
AND NYSTAGMUS

The reading with nystagmus simulation sounds very interesting.  Now I am
intrigued.

Was it something like a you tube video?

Here's something I found:

http://books.google.com/books?id=ypXYF-UeR_cC&pg=PA168&lpg=PA168&dq=simulation+of+reading+print+with+nystagmus&source=bl&ots=Zj_sZO47c3&sig=cc5WuWCRfnIdNL9l5J9KkRKR2U4&hl=en&ei=oEOuTpqtGuSFiALh5q3wCg&sa=X&oi=book_result&ct=result&resnum=3&ved=0CCwQ6AEwAg#v=onepage&q&f=false

It's from  Low vision: research and new developments in rehabilitation By
Aart C. Kooijman.  It's a
description of how to use an overhead projector to simulate reading with
nystagmus.

-Andrea

On Fri, Oct 28, 2011 at 8:47 PM, Carol Evans [email protected]wrote:

Andrea ... thank you so much!  That link has much to offer.  It might come
in very handy in this situation.

I agree that all simulations are an approximation.  No two people, even
with the same diagnosis and same acuity, see exactly alike.

Many years ago when I was gathering simulations for a presentation, I came
across one of nystagmus.  It was in motion, showing what print would look
like to a person with nystagmus.  I lost it, and despite searching for it
many times, I never found it again.

I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who
can find a motion simulation of nystagmus for me!

Thanks ... Carol Evans


From: Andrea Story [email protected]
To: Carol Evans [email protected]
Cc: "[email protected]" [email protected]; New vision
list [email protected]; Siemsen OD Dennis [email protected]
Sent: Friday, October 28, 2011 9:53 PM
Subject: Re: [AERNet] Simulation of vision with septo-optic dysplasia

I've never seen a pictorial simulation of SOD/ONH.  I think it varies in
expression so much from person to person that it's hard to generalize
SOD/ONH like the conditions that are regularly seen in those simulations
(macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.).

Most of the eye conditions that are simulated are those that are late
onset - which are ones that an adult can clearly articulate what their
vision is like and what it is missing from before.

You might be able to do a informal field test with the child and make a
simulator with goggles (if visual field is the only thing you want to
simulate).  It would be an approximation but aren't all simulations an
approximation?

So many people with SOD/ONH have CVI like characteristics.  I haven't seen
good simulations of those except maybe illusions like this:

http://www.michaelbach.de/ot/cog_dalmatian/index.html

I for one would like to see a simulation of SOD/ONH if there is one out
there - but I don't think there is one.

-Andrea

On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans [email protected]wrote:

Valued colleagues:

Can anyone send me a picture, or direct me to a website with a picture
that would simulate how a person with SOD would see?

Doing a consultation for an eval with young child suspected of having
autism, and think that it would help the ADOS examiner to see what that
visual field would look like.

Thanks very much for any response.

Carol Evans

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I don't completely understand congenital nystagmus but that won't stop me from giving this further advice (my advice is worth what you pay for it!). People with congenital nystagmus report that they do not see things move (like print jumping around) so in this way the nystagmus simulation is imperfect. However, the simulation does show that the smaller print is harder to read (it blurs when it is moved around). You might want to explain when using this simulation that a person with congenital nystagmus does not see the print jumping around. I think you could reproduce the simulation on a computer screen (moving the screen up and down with two fingers on the track pad) or on an iPad (using the notes app that comes with the ipad I can move it up and down with a finger). -Andrea On Mon, Oct 31, 2011 at 3:03 AM, Carol Evans <[email protected]> wrote: > Andrea, > > Very interesting resource ... thank you! Maybe I could manage to do that > thing with the transparency on the overhead projector. > > It was video, but I don't think I knew about youtube then. It was close > to 13 years ago. > > Thanks ... Carol > > > ------------------------------ > *From:* Andrea Story <[email protected]> > *To:* Carol Evans <[email protected]> > *Cc:* "[email protected]" <[email protected]>; New vision > list <[email protected]>; Siemsen OD Dennis <[email protected]> > *Sent:* Monday, October 31, 2011 12:54 AM > *Subject:* Re: [AERNet] Simulation of vision with septo-optic dysplasia > AND NYSTAGMUS > > The reading with nystagmus simulation sounds very interesting. Now I am > intrigued. > > Was it something like a you tube video? > > Here's something I found: > > > http://books.google.com/books?id=ypXYF-UeR_cC&pg=PA168&lpg=PA168&dq=simulation+of+reading+print+with+nystagmus&source=bl&ots=Zj_sZO47c3&sig=cc5WuWCRfnIdNL9l5J9KkRKR2U4&hl=en&ei=oEOuTpqtGuSFiALh5q3wCg&sa=X&oi=book_result&ct=result&resnum=3&ved=0CCwQ6AEwAg#v=onepage&q&f=false > > It's from Low vision: research and new developments in rehabilitation By > Aart C. Kooijman. It's a > description of how to use an overhead projector to simulate reading with > nystagmus. > > -Andrea > > > On Fri, Oct 28, 2011 at 8:47 PM, Carol Evans <[email protected]>wrote: > > Andrea ... thank you so much! That link has much to offer. It might come > in very handy in this situation. > > I agree that all simulations are an approximation. No two people, even > with the same diagnosis and same acuity, see exactly alike. > > Many years ago when I was gathering simulations for a presentation, I came > across one of nystagmus. It was in motion, showing what print would look > like to a person with nystagmus. I lost it, and despite searching for it > many times, I never found it again. > > I'll mail a pound of Cummings chocolate (best made in Utah) to anyone who > can find a motion simulation of nystagmus for me! > > Thanks ... Carol Evans > > ------------------------------ > *From:* Andrea Story <[email protected]> > *To:* Carol Evans <[email protected]> > *Cc:* "[email protected]" <[email protected]>; New vision > list <[email protected]>; Siemsen OD Dennis <[email protected]> > *Sent:* Friday, October 28, 2011 9:53 PM > *Subject:* Re: [AERNet] Simulation of vision with septo-optic dysplasia > > I've never seen a pictorial simulation of SOD/ONH. I think it varies in > expression so much from person to person that it's hard to generalize > SOD/ONH like the conditions that are regularly seen in those simulations > (macular degeneration, diabetic retinopathy, glaucoma, cataracts, etc.). > > Most of the eye conditions that are simulated are those that are late > onset - which are ones that an adult can clearly articulate what their > vision is like and what it is missing from before. > > You might be able to do a informal field test with the child and make a > simulator with goggles (if visual field is the only thing you want to > simulate). It would be an approximation but aren't all simulations an > approximation? > > So many people with SOD/ONH have CVI like characteristics. I haven't seen > good simulations of those except maybe illusions like this: > > http://www.michaelbach.de/ot/cog_dalmatian/index.html > > I for one would like to see a simulation of SOD/ONH if there is one out > there - but I don't think there is one. > > -Andrea > > > > On Wed, Oct 26, 2011 at 1:11 PM, Carol Evans <[email protected]>wrote: > > Valued colleagues: > > Can anyone send me a picture, or direct me to a website with a picture > that would simulate how a person with SOD would see? > > Doing a consultation for an eval with young child suspected of having > autism, and think that it would help the ADOS examiner to see what that > visual field would look like. > > Thanks very much for any response. > > Carol Evans > > > > > You are subscribed to AERNet, The Association for Education and > Rehabilitation of the Blind and Visually Impaired Listserv. > > To post a message to all the list members, send an email to > [email protected]. > > Address list requests to: [email protected] > > To unsubscribe from this list, go to > http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org and > follow instructions to unsubscribe. Go to the same address to access the > list archives. > _______________________________________________ > AERNet mailing list > [email protected] > http://lists.aerbvi.org/mailman/listinfo/aernet_lists.aerbvi.org > > > > > > > >